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Our Mission
The IM Strong Foundation is a family run non-profit organization dedicated to improve the lives of individuals and families affected by Infantile Myofibromatosis through research, emotional support, and information sharing.​Our vision is a world where all families affected by IM have access to current research, effective treatment, emotional support, and a clear path toward hope.
Our Story
The IM Strong Foundation was born from our family’s multi-generational journey with Infantile Myofibromatosis (IM) — a rare pediatric condition that has deeply impacted our lives in many ways.
For years, IM was misunderstood and under-researched. We experienced firsthand both the progress in research and the painful gaps that remain. Through our family’s journey, we’ve seen the power of connection — and the desperate need for more resources, research, and support for families like ours.
That’s why we founded IM Strong: to turn our story into strength for others, and to ensure no family walks this rare journey alone.
Get In Touch
Inquiries
For any inquiries, questions, or to share your story, please reach out to us at