Welcome! We're so glad you're here.
Whether you've just received a diagnosis, or have been navigating Infantile Myofibromatosis for years, or are supporting someone you love, you've found a community that understands.
One of the hardest parts of living with a rare disease is feeling like no one else truly "gets it". Our hope is that this space becomes a place where families can ask questions, celebrate victories, share difficult days, exchange experiences - and remind eachother that no one has to walk this journey alone.
There is no question too small.
There is no concern too insignificant.
And there is always someone here who cares.
🤍 Let's get to know one another!
If you're comfortable, we'd love for you to introduce yourself by sharing:
-Your name and where you're from (optional)
-Who in your family has IM
-Age at diagnosis
-A little about your journey with IM
-One thing you wish you would've known when you were first diagnosed
Whether your story is just beginning or spans generations, your experience has the power to help another family feel less alone.
Thank you for being here.
Welcome to the IM Strong Family đź’™
Here is your place to ask questions, share experiences, and find comfort in knowing you're not alone.
We encourage you to introduce yourself and your own personal experiences with IM.